Time for another update. So, I saw my doc on Friday 2/21. She
said I was looking great and gave me referrals to the oncologist and to
physical therapy. Yay, on to the next
phase. I asked about my Oncotype DX
result and she said it was still not back
– these things sometimes take a looong time. My teacher friend had her
surgery on 2/7 and her results were back two weeks ago - WTH? There is only ONE lab that handles Onco DX tests. Well, on Monday I
decided to advocate for myself and called the lab… lo and behold, they received
the “order” on the 21st! Not
the sample --the *order*! Coincidence?? I don’t think so! I seriously think my doc had an “oh crap”
moment when she met with me and realized the sample never got sent. She was on vacation two weeks after my
surgery and somebody forgot to do something. I called my nurse navigator and Dr. B’s
office to share my conversation with the Genomic Health Lab in CA and my “concerns”
about the order not even being received until the 21st. Yeah well, Dr. Bellavance called me
personally later that day to apologize. She said something along the lines of, “I certainly learned a lesson in
follow-up”. I’m not exactly sure what
that means but translates in my opinion to “someone dropped the ball”. Now, as I search for life lessons throughout
my process I realize getting angry won’t get my results any quicker;
nonetheless I am pretty peeved – and tired of WAITING. So by this point on 3/1 the lab officially
has my sample and will process results within two weeks (I got confirmation
calls from both the lab and my nurse navigator). At least
my name is now fresh in their minds and I will hopefully get calls as soon as
results are back. Reminder, this is the
test that provides a number which helps to predict the likelihood of distant recurrence;
a big piece of the puzzle with which to make a decision about chemo.
I saw my plastic surgeon on Thurs. and got my first saline
fill! We’ve already established that
those of you who are continuing to follow are prepared to hear TMI….Well, the fills feel like nursing breasts
three hours beyond feeding time. OW! She
put in about 80 CCs which is approx. 3 ounces and that put me at about an A cup
which means I have a ways to go. I will
continue to get fills about every week to two weeks depending how I tolerate
the discomfort. I will go until I am happy with the size and
will then have another surgery to swap out the expanders for the permanent
implants. I am not sure how long this
whole process will take as it varies for many women, but I hope to be finished
by August so that I can start school WHEN I get a teaching job and have this
all behind me. That said, this is still pending
the decision about chemo.
I had a lovely meeting with my professors from FSU this week
to formulate a plan for my return and revisit timeframes to complete assignments
required for graduation. I will be
starting back half days in my teaching placement so that I can transition back slowly
and see how I feel. I started back yesterday
and it was fantastic! So great to be showered and dressed in something other
than yoga pants and hoodies. It was
wonderful to see my kiddies who were full of smiles and hugs for me. My mentor teacher is amazing; countless check-ins
and take it easy reminders. Admittedly,
I was exhausted by the end of the day! Took Devin to gymnastics, had dinner,
sat on the couch, and was in a coma by the end of Jeopardy.
While at my meeting and discussing graduation requirements, we discussed among other things, a fantastic idea, suggestion, endeavor, serendipitous
opportunity… Call it what you will, I have to do an action research project and
my blog may very well be a great avenue for research. My research methodology would be a self-study
and by virtue of sharing my story and assessing how my “life change” affects me
as a person/educator I could produce a really interesting project. So stay tuned to follow me along (on my
journey) as I delve deeper into introspection and assessment. Reflection is all the rage in professional
development – who knew a life altering diagnosis, could be such a “gift”?! “Oh the
Thinks You Can Think… When You Have Breast Cancer!” ~ whaddaya think?
Well, those are the updates and highlights of the week. Overall, hangin’ in there. My biggest struggle four weeks post-surgery
is that I am constantly tired and sore and frankly, tired of being tired and
sore. In the week ahead: Tuesday – Oncologist, Wednesday – Physical Therapy,
Friday – Plastic Surgeon for another fill and all week back in class half days.
Thank goodness they’re half days, because all of these doctor appointments are
time consuming! Emotionally stable at
the moment, but that may be the next topic for discussion as that seems to be
pretty erratic! Stay tuned.
Love to ALL J
Oh my Doreen...I'm so sorry to hear this...it didn't really sound right that I had my results before you but I just thought it was different because we were at two different facilities. I'm glad you took matters in your own hand and for things rolling. You hit the nail on the head about your reference to nursing. my mom asked how I felt today and I said I wish I could nurse my child...ugggghhh!!!!!! You are so strong going in to school...I feel like if I'm up to long I'm swollen under my arms and my chest swell to b cups...Lol! So good for you for getting it in! MY last thing I'm.waiting on is a study called mammoprint. I'm in the gray area of the oncotype and this will determine if I'm low or high. A high score would lead to discussion whether it not to add chemo. right now it's tamoxifen for 10 years. I'll be praying your score comes quickly and its low,;)
ReplyDeleteLovely and eye opening for those of us who have had family/friends go through this process but never talk about it!! Hugs from the Tarmy's
ReplyDeleteThis comment has been removed by a blog administrator.
ReplyDelete